Rounds Inspirational Journeys

I am posting this a little late for the June contest, recipes are due by June 21, but this a great time to start planning for submissions to the winter and spring contests. Abbott today announced the launch of four themed recipe contests as a part of the CFChef program, an online nutrition resource developed to address the specific nutritional needs of people living with cystic fibrosis (CF). The CFChef program will host “Cookout” and “Back-to-School” recipe contests through June 21, 2012 as well as the “Winter Holiday” and “Spring Holiday 2013” recipe contests later in the year. Individuals touched by CF are invited to submit original recipes for a CF diet or CF adaptations of traditional meals online at www.Chef4CF.com.   "Providing nutritionally balanced, CF-friendly recipe options through the CFChef program helps patients learn more about the importance of nutrition," said Jim Hynd, divisional vice president, Cardiovascular Care, Metabolics and GI Care.  "For...

I just realized I never posted the pictures from Jason's awesome visit!  Here they finally are: Warming up for Friday night's show at Teen Club, Oasis I am sure you can't tell that Hannah was happy! At the Show!  The kids had a BLAST! Saturday Brunch with Jason and my Girl's Group Jason with our sweet dog Cracker We had so much fun with Jason and his brother Jake on Friday night, that we stayed up until 4:00 a.m. Needless to say, we were all pretty tired by Saturday afternoon! Unfortunately, I don't have any pictures of Sat.'s show because I was video taping it, but here are the girls with Jason after! Sunday morning Jason helped Hannah with a piano part on one of his songs.  She was in her GLORY! We enjoyed Jason's visit so much, we will be bringing him back this October!

We had the opportunity to have my mom here for two weeks.  It is always such a joy to have her here, especially now that she and I can work together around the house and not have me sick and watching. Mom was especially looking forward to seeing Hannah dance at a Feis (Irish Dance Competition), so she accompanied Hannah and I to Buffalo.  Here are some pics taken that day! Hannah with one of her best dance friends, Katie! Mom & Hannah Three Generations Family is truly a blessing!

You did it! Both the House of Representatives and Senate have passed legislation that includes the Expanding and Promoting Expertise in Review of Rare Treatments (EXPERRT) Act. Now, let’s say thanks! Thank your members of Congress for supporting the EXPERRT Act. The EXPERRT Act will make it easier for the FDA to access outside expertise needed to understand the science behind new drugs intended to treat CF and other rare diseases. It passed because advocates like you reached out to your elected officials to show how important the EXPERRT Act is for people with CF.  Thank you again for your help and determination! Together, we are making a difference for all people with CF.  Sincerely, Mary Dwight Vice President for Government Affairs Cystic Fibrosis Foundation (800) FIGHT CF publicpolicy@cff.org