A message from Nancy's Dad to those who love her.

Nancy's health continues to deteriorate, but she is keeping a very positive outlook while at the same time realizing that the longer the wait goes on the less chance there is that she will survive until she can receive this transplant. It is agonizing to watch her have to struggle this way, but if anyone can make it, we know she has the will and the determination to do so. Now it is simply beyond our control and we will need to accept whatever fate awaits her and us. Bad things do happen to good people, but it is the way we choose to live our lives, regardless the outcome, that either make us miserable or make us fight and take advantage of every last breath we take to try and make a difference for someone else. Nancy's life and legacy will be one of sharing her joy and love for life and her willingness to serve as an example for others to help them understand that it isn't how long we live, but how well we live that is the most important lesson to be learned from a terminal diagnosis. She has become an inspiration to many, including Ann and me, and we are so very proud of all that she has accomplished in her 33 years. She has lived a productive and full life in spite of her disease and all it's dealt her, and she has achieved so much more than most who have lived far longer than she has. What an example she has set for her daughter, her friends, and her family. We have done all that we know to do to get her to the point where she can have this transplant, and if God or fate allows it, she will have at least a few good years more to enjoy and love all of us and we to love her in return. If that is not meant to be, we will have no regrets knowing that we did all in our power to give her this opportunity and we MUST accept whatever happens as being the way things were meant to be. Nancy is a very religious woman and she has accepted that what ever God's will is she must accept it. And we go on one day at a time making the best of the time we have with her.

Comments

Jamie said…
Don't get too discouraged...I was on 6 liters of oxygen with only 11% lung function- My carbon dioxide levels were around 120 therefore I had to be placed on a ventilator to stay alive untill they could transplant me. They did still transplant me and despite my health pre transplant I survived the surgery and I am now past 8 months post surgery. Pittsburgh is full of amazingly talented doctors and surgeons who with the Lords hands guiding them and you, Miracles happen! I was about as sick as CF/Cepacia could be & I still made it- There is always hope if you have Faith in the Lord (which I know you do)
Becky said…
WOW! My heart just trembles for you. I know that you all are hanging in there the very bestest you can. God is an awesome God and He does awesome things. I hate the thought for even a second that Nancy might be taken from us, but on that same note, heaven is an awesome place and ohhhh to be able to breath again--I know that she cant say no to that either.

My prayers are especially with you all, for little Hannah and for Scott -- you all have endured much.

Nancy, we love you and think of you constantly. Youre a great lady and amazingly strong. Hang in there best you can. I just KNOW your lungs are out there--just a waiting for the cue to head your way.

Be blessed friends,
Becky
Nancy,

God has plans, and I trust he has good ones for you, Hannah, Scott, Brian, and your parents. Plus everyone else who loves you! You are sooo strong, so faithful, and I know great things will come. You are in our prayers!

Love yah lots!
MaryBeth
Unknown said…
Nancy is so blessed to have such an amazing family around her. I know she draws strength in that. My family and I will be praying for Nancy to get her transplant. Her and I have several years to catch up on. In the last few days I have learned that she is still the amazing girl I knew in school the only difference is now I have matured enough to truly appreciate her and the friend she was to me growing up. Our prayers will also be with you and Ann, Hannah and Scott during this trying time. God Bless!

Angela
Amy Deahr said…
We are praying for all of you. You are such an amazing family and that is why Nancy is such a wonderful and beautiful person!

Love, hugs and prayers,
Amy
Deb said…
What a beautiful message - so eloquently written, so perfectly true!
I continue to keep all of you in my prayers; not a day goes by that I don't think of you all and ask God to bless you as you journey through this difficult time.
Keep believing! A new, deep breath is just around the corner for Nancy!
Love,
Deb
Cammi said…
What a beautiful tribute of love. Thank you so much for sharing.

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