Major Milestones

Hello friends!



Today I have had two major milestones. First, I got to my appointment at the hospital without using a wheelchair (I walked the whole way, hooray!). Second, we had to take my dad to the airport to get a rental car (more about that in a moment) and on the way home Mom and I stopped at IKEA to do my walking for the day. I walked the entire IKEA store, BOTH floors! Please pinch me, this doesn't even seem possible. What a wonderful feeling!



The initial study appointment went well. The study I am participating in involves the inhalation of an anti-rejection drug that is currently only approved for oral ingestion. If I am chosen for the test group, I will inhale Cyclosporine 3 times a week for 2 to 3 years. This is a phase three study, meaning it is a follow-up to other studies and the last step before FDA approval. I do not know if I am in the medicine or the standard care (no medicine, just monitoring) group. Early studies have shown significant reduction of rejection in individuals who used inhaled Cyclosporine, so please pray I am chosen for the medicine group. I will find out which group I have been assigned to next Friday.





I am excited to report that I approved my latest book today, My Quest for New Lungs, which is an unedited transcript of my blog starting in April and ending December 31, 2008 and including all posts, pictures, and comments. As I mentioned before, I made the book for myself so I would have a record of my blog, but several of you have asked for copies, so I will put it online for you to purchase if you would like. The price I need to charge in order to break even is $20, the book is 824 pages! If you would be interested in ordering you can go to:


https://www.createspace.com/3369179 . It will also be available on Amazon in about 10 days.

I mentioned bringing my dad to get a rental car, well, let me tell you why. He is on his way to Baltimore to attend the inauguration events in Washington. Now, I have never mentioned politics on my blog, that isn't my focus, and I certainly don't want to offend anyone, but I must tell you how excited I am about the swearing in of Barack O'Bama. Having read both of his books and following him closely through the election, I think he is an amazing man who will do great things for our country. I am thrilled that my father has the opportunity to be there (whether he can see anything or not); what a historic and momentous day for our country!

Well, I have written enough. Hannah and Scott are on their way, so don't be concerned if you don't hear from me for a few days. I will share all about our visit when they leave on Monday.

God bless you all! Nancy